Wednesday, January 11, 2017

I've Got Cabin Fever!



It’s been two months since my last post, so I guess I should say something to let folks know I’m still around. I haven’t been in a writing mood lately and have been putting this off for a while.
At my last post I was preparing to go to the wound center for an open lesion on my left leg. That one healed pretty quickly, but a couple of new ones popped up on my right leg that took a while longer to heal. All better now, but I’m continuing to wear some compression hose on both legs to keep down the edema.

My church has a special service on Thanksgiving weekend every year and a few of the men are invited to speak about what they’re thankful for. Since things had been going very well for me, I asked to be one of the speakers back in October. At that time I was up and walking around without oxygen and feeling extremely good. Lots of things to be thankful for! By the time Thanksgiving rolled around I was still doing well but wasn’t able to stand for extended periods and had to rely on a stool to support me while I spoke. Soon I was back on oxygen 24/7 and barely able to stand up. I was admitted to the hospital in Gotham on Dec. 7th for extreme shortness of breath. A thoracentesis treatment drew 1.4 liters of fluid off my right lung and a bronchoscopy followed the next day. The surgeon removed some additional fluid from inside my lung and trimmed back some of the cancer that was invading my middle airway that was causing some of the shortness of breath. Too bad they couldn’t get all of it. After 11 days, I returned home shortly before Christmas.

I’m still recovering my strength and am still on oxygen 24/7. I have only been out of the house once for a follow-up visit to Dr. Whoosh a couple of days ago. I get to try driving tomorrow, taking my wife out for a couple of errands. I resume my immunotherapy treatments on Friday.

Things have been pretty dull lately, sitting around watching TV, reading, playing computer games, doing a little Photoshopping, and taking long naps. Looking forward to being able to drive again, hoping tomorrow’s outing goes well. I'm getting cabin fever...

Thursday, November 10, 2016

The Wet Feet Mystery



It’s been about three weeks since my last post, so I guess it’s about time for an update. I made two trips to Gotham to see my doctors last week. A good visit with my cardiologist, doesn’t want to see me for six months unless something develops. Doctor Whoosh thinks he might resume my cancer treatments next week. The steroids he put me on have caused me to pick up about 15 pounds, that and a ton of Halloween candy.

The long journey to the 2016 election is finally over and we have a new president-elect. Half of my friends on Facebook are happy, the other half can’t believe what just happened. The sudden disappearance of political ads on television is a nice change. If the news media will stop obsessing over it, things might get back to a semblance of “normal” some day.

I woke up Wednesday morning and noticed the bottom half of my bed was very damp. No, I don’t sleep in a waterbed. Putting on my house slippers, one of them was completely soaked…like you’d dipped it in a bucket of water. It was very puzzling. I didn’t wet the bed, I wasn’t sweating, I was unable to figure out where the moisture came from. My wife suggested I might have left a partial bottle of water balanced on the foot of the bed and it spilled in the night. A fresh set of bed sheets and I went to bed last night in a dry bed. I woke up this morning and the bottom of the bed was damp again. My left shoe was soaked again. I was completely puzzled by what was going on. I thought either somebody is pranking me or this old house has spawned a bed-wetting ghost. The sheets are wet but the duvet is dry. I slept in my socks and they are dry. Finally my wife asked if I had any wounds on my legs. Examining my skin, I discovered a small scrape about the size of a dime on my left leg just above the ankle that was slowly weeping moisture. With my diabetic neuropathy, I couldn’t feel it. The scrape doesn’t look like something that would completely soak my shoe, but who knows? I’m putting a gauze bandage on it today, if it doesn’t get better I’ll be visiting the wound center in the next day or two.

Thursday, October 20, 2016

But, It Was Just A LITTLE Itch!



I just got back a little while ago from my latest visit for chemotherapy. They insist on setting my appointments as early as possible, so I have to leave Smallville in the wee hours of the morning in order to arrive in Gotham during the middle of the morning rush hour. For a long time I noticed that gasoline prices in Gotham averaged anywhere from 15 to 25 cents cheaper than local.  Since it takes almost three quarters of a tank to get there and back, I developed the habit of leaving town with just enough gas to get me there (with a little to spare) and filling my tank with the cheap stuff.  Suddenly something changed. Gas in Gotham was more expensive there than it was in Smallville. I figured it was just a temporary thing the first couple of times, but after three times I figured I’d better fill up before I left. Gotcha! Gas was twenty cents cheaper in Gotham today. Some days you just can’t catch a break.

As I mentioned in my previous post, I’ve had some side effects from the new treatments. Most noticably, I've had a lot of itching on my back, shoulders and knees. Scratching at the itches has left a few small scabby places which I sort of expected…I wasn’t too concerned. The nurse asked me about the itch today, how it was doing, which I told her wasn’t severe and showed her one of my shoulders. “Hmm,” she said, “not too bad but we’d better have the doctor take a look at it.”

Doctor Whoosh arrived within a few minutes and took a quick look. “We’re going to give you a treatment today, but we need to postpone your next treatment for a couple of weeks and put you on some steroids to clear that up. I’ve seen this before in some of my patients and my concern is that if it gets worse, your skin could fall off.”  I thought he was joking, but he wasn’t smiling. He was serious. Terrific, just what I need…my skin sloughing off like an escapee from The Walking Dead.  If I start moaning “BRAINZZzzz,” and walking with a pronounced limp, you’d better give me a wide berth.

Upon returning to Smallville, I discovered that my insurance had denied coverage of the prescription for the steroids. I bought enough out of pocket to cover me for a few days while I call the insurance people and threaten to go Zombie Apocalypse on them if they don’t change their mind.

Tuesday, October 11, 2016

The Cat Did It...

I awoke this morning to discover that one of the cats had knocked a nearly full can of green wall paint off a table and onto the kitchen floor sometime during the night. Our dog, a Jack Russell that can't sit still, then tracked it through every room in the house. Spotty green paths on dark brown going in every direction. Not to be outdone, the cat took the mayhem into the vertical dimension and tracked it onto chairs, beds, tables, desks, and whatever else it could find to climb on. We're still assessing the damage, but it looks like a trip to the paint store to get something to cover this mess up with is now on today's agenda.

In health news, my latest round of chemo went well. I've been experiencing a few minor side effects but nothing I can't handle so far. It's mostly some fatigue and excessive itching on my back, shoulders and knees. My next treatment is in about 10 days or so. The latest CT scan showed no growth in my cancer since the last one.

Thursday, September 08, 2016

Immunity Idled



I finished the second round of my resumed cancer therapy today. The first treatment went well resulting in only one of the potential side-effects, mouth sores. I probably exacerbated the problem by eating pizza with banana peppers, jalapeno poppers and chewing cinnamon breath mints the day before I realized what was happening. What can I say, I love spicy foods! I’ll try to be more responsible this time and stick to chocolate pudding and cottage cheese…bleah. I’m also surrounded by people coughing and wheezing with what appears to be the flu. Since the cancer therapy compromises my immune system, I’ve been hibernating in my bedroom, only venturing out wearing a face mask and wielding a spray can of Lysol disinfectant spray.

You’ll recall that I had a vascular access port installed back in April to avoid the repeated poking of my hands by well-meaning nurses taking blood samples. Well, to paraphrase Robert Burns, best laid plans oft go awry. Last week the first home care nurse to visit me tried three times to access the port, then tried my hand. No blood resulted. The next day they sent a second nurse. She tried twice to access the port and ran out of the special needles required…they ran through a month’s worth of supplies in two days. The second nurse did succeed in painfully getting enough blood from my hand.

Today I asked the nurse doing the cancer therapy if they could leave my port accessed since I’m scheduled for another blood sample tomorrow by the local home care nurses. After looking at the port site, the nurse was horrified. There was still a significant mark where the two home care nurses had tried to access the port last week. Worrying about the possibility of infection or potential damage to the port, she contacted my oncologist and got the okay to take a blood sample while I was there. They also said they would be glad to do it for me in the future to avoid more problems. Sounds good to me, I just need to clear it with my family physician and the home care folks.

Some of you may know that I like to use Photoshop and participate fairly regularly in online contests. While I try to be a “model Christian,” occasionally a funny idea pops into my brain that is a bit irreverent or somewhat risqué. I struggled with this for a long time. I love to make people laugh, but I don’t want to be branded as a “dirty old man” either. Being a deacon in the church just made matters worse. If some of the more conservative members of the church saw my work they would probably have an apoplectic fit. After a long time trying to balance the two extremes, making people laugh at something that’s somewhere out in left field and being a prim and proper Christian, I finally came to the conclusion that everyone has an occasional thought of that nature whether they will admit it or not. I don’t hide the fact that I’m a Christian online, but I don’t always fit in the mold either. I received a very polite e-mail today from another Christian who had read my online profile and admired my Photoshop work. I also have a few agnostics and/or atheists who follow my blog and make positive comments upon occasion. Sometimes you can be your own worst critic. When I stand back and look at things, I guess I’m not as a bad of a person as I thought I was.

Friday, August 26, 2016

A Potpourri



It's been a while since I last posted something personal, so tonight's missive is a little longer than usual and contains a medley of several things that I've had on my mind that have no connection to each other whatsoever.

Many years back at the home we lived in before this one, I hung a hammock between two trees. Everyone in the family used the hammock, my daughter even taught one of her cats to sleep in it. Sometimes there were minor arguments over who got to lay in it. When we moved to our current home, my oldest son moved into our old one. His family loved the hammock too.

Now we all live in the same house and because there were no trees close enough to each other, there was no hammock. Taking the initiative, my son bought a sturdy wooden post and sank it into the ground close enough to a shady tree that a hammock could be hung. The family hammock was once again a part of our lives. My grandchildren discovered a it was a great place to play. Everyone loved the new hammock.

A few weeks after installing it, a crew from the electric company showed up and said they needed to “trim” that tree because it was about to touch their lines. It was the only shade tree out of several dozen in our yard that they said needed work even though several are near the same lines. Trim is not exactly what they did. “Butchered” would be a better description. What is left can barely be called a tree. One large branch with a few small scrawny ones on it is about all that is left. Think of a larger version of the tree in “A Charlie Brown Christmas” and you’ll have a pretty good image. A significant portion of what remains is just dead wood with no leaves at all. The entire top that provided most of the shade is completely gone
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A new post has been purchased and we’re trying to decide which one of the other trees would be good to hang a hammock from. First item on the criteria list is that it can’t be near electric lines.

Tonight was “clean out the drawers in the bathroom” night at Grampy’s house. I’ve talked before about how many bottles of various shampoos and body washes my wife collects in the shower. That’s nothing compared to the drawers we went through tonight. My stuff fits in a tiny basket about 6” square; a couple sticks of deodorant, a bottle of aftershave, a handful of disposable razors and a couple of other miscellaneous items. The female paraphernalia on the other hand was a staggering mountain of perfume, lotion, makeup, lipstick, nail polish, hair ties, combs, brushes, and enough body cream to grease down a herd of elephants. Since the wife has low vision and all the bottles and tubes are labeled in 8 point font, I had to read just about every one of them for her. After two hours of weeding out empty containers and things that are no longer wanted, needed, or are unidentifiable, we ended up with two large garbage bags full of junk.

I finally resumed my chemo treatments on Monday, no noticeable side effects have manifested as yet. I’m still feeling better than I have in a long time. It’s been about a month since I last got out of the hospital and I’m certainly enjoying the newfound vigor. I realize it won’t last forever, but for the time being it’s wonderful to move around without dragging an oxygen tank or thirty feet of plastic tubing behind me.

My family doctor has had me on home care since April. I get a visit from a nurse once a week to check my vitals, take a blood sample and ask me the same twenty questions; name, birth date, no open wounds, no falls, nobody abusing me, I’m not depressed, no pain on a scale of one to ten, et cetera. About the only thing they don't ask is to have you recite the alphabet backwards.

One of the other things I’m set up with is called Telemed. It’s a little black box tied to the phone line with a blood pressure cuff, a pulse-ox clip and a scale attached to it. Every morning promptly at 9 a.m. it wakes me up and takes my vitals. It then immediately sends the data directly to the home care people. If I’m not at home it still calls them and tattles on me if I forget to unplug it before I leave. I’m away from home for good reason though. Some of my doctors in Gotham aren’t willing to adjust their schedules to accommodate an afternoon appointment so I have to leave home around 7 a.m. to get there on time.
The Telemed unit has a defect that causes it to add 10 any number that contains 30 to 39. So if my weight ends with 40 one day and the next day the number ends with 39, the unit reports 49 instead of 39. It sounds like I gained 9 pounds in a single day instead of losing 1 pound. I’ve told them several times about the glitch but I don’t think they believe me. It does the same thing on my blood pressure.

I had a “Power Port” surgically implanted the last time I was in the hospital so I wouldn’t have to go through being stuck in the hand multiple times whenever I had a blood sample taken. Apparently the surgeon didn’t position it the way the nurses expect because they always miss it the first time they try to take blood. They miss it even when I tell them where it is and they feel around for it. So I still end up getting stuck at least twice. At least it doesn’t hurt as much as getting stuck in the hand.